World Hemophilia Day 2014

Today is April 17, 2014. Today is a day for remembrance. Today is a day of gratitude and thanks. Today is a day like no other… Today is World Hemophilia Day.

For those of you who don’t know… Hemophilia, Von Willebrands, and other bleeding disorders are inherited or mutated problems that affect our ability to clot. In other words, if we get an internal injury (bruise, muscle injury, joint damage, or other form), it is impossible (or nearly so) to stop the bleeding. Prior to the 1960s we bled until we died or suffered irreparable injuries. Once blood products were available to stop the bleeding we were living longer lives. But… Along with this miraculous cure came blood-borne pathogens and viruses like Hepatitis and HIV. These cursed side-effects nearly killed off all hemophiliacs during the 80s and 90s. However, we overcame this plague era and thrived to carry on for future generations.

World Hemophilia Day was set aside to think about and remember people with bleeding disorders. This day is a special day designated to raise awareness and care for people who suffer from bleeding disorders.

Along with many of the bleeding disorder community, I am going to work hard to raise awareness by tweeting throughout the day. I will use the HASHTAG “#WorldHemoDay” and, along with many others, attempt to make this HASHTAG a “trend.” In order to get a HASHTAG to trend, you need thousands of related tweets within the same hour… So, I plan to HASHTAG it all day long, with an emphasis on banging out bunches of tweets during the one hour window of 11 a.m. until 12 p.m. EST. Please join me and help raise awareness!!!

If you do decide to participate in our tweet-fest, please make sure you include the HASHTAG “#WorldHemoDay” at the very least, and consider including these awesome organizations: @WFHemophilia @HemophiliaFed @NHF_Hemophilia

Here is a sample tweet that you can adjust accordingly:

Today is #WorldHemoDay PLS remember all easy bleeders and visit these orgs: @wfhemophilia @hemophiliafed @NHF_Hemophilia PLS RT

 

Also, @hemophiliafed, @NHF_Hemophilia, and @wfhemophilia are having a discussion on Twitter at 1 p.m. EST. Search for the HASHTAG #HemoChat and chime in!!!

In addition, please help me with my bid to put a hemophiliac on the cover of Men’s Health magazine for the first time ever. We can make a statement that hemophiliacs and other people with bleeding disorders are capable of being healthy and fit too. And, we can raise a huge amount of awareness with this cover. You can vote here: www.mhguysearch.com/entry/37

No matter what you do to spread awareness, also remember to take a few peaceful minutes to remember our fallen brothers and sisters. They died so that the rest of us can have better service and treatment. They died so that we have better and safer blood products and medicine available. They died for US.

God bless the easy bleeders!

Thank you for your love and support,
Vaughn “the Easy Bleeder” Ripley

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About Vaughn Ripley

Vaughn is a happily married daddy, author, and CIO. He is an HIV+ hemophiliac, and is one of the longest surviving HIV+ people in the universe.
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Follow Vaughn on Twitter: @vripley
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Read his personal blog: HIVLongevity.com
Visit his web page: www.VaughnRipley.com

Comments

  1. God bless YOU, Vaughn! Thanks for all you do for our bleeding disorders community.

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