This coming Sunday is Mother’s Day. And, it is a time to be grateful for all that your mother has done for you. Make sure that you not only let her know how much you appreciate everything she’s done for you, but also show it by showering her with love.
Trinity, Xander, and I are going to bring my soul mate and their mother a special breakfast in bed. The kids are soooo excited, and already planning all kinds of fun stuff. This is a great opportunity for daddy to bond and have fun with the kids as well.
Today I wanted to take a different approach and hit on a special group of moms. I’d like to dedicate this post to hemophiliac moms. All mothers have a very tough job and they determine the outcome of a child’s beliefs and character. I consider this job one of the most important in the world (and toughest!) That said, there is another breed of moms that take it to a whole new level. Mothers who have children with disabilities are on on a whole new plane. These moms not only have everyday normal things to deal with, but they also do regular trips to the doctors, specialists, hospitals, counselors, and treatment centers (among other places). They do everything that all mothers do, plus have a plate of troubling times that most of us would run screaming from.
These moms are a special breed. And, today’s special breed is close to my heart, because my mom is one of them. And, my wife is one of them. I can never properly convey the amount of gratitude and appreciation that I have for these AMAZING women! If you are the mother of a child (or children) with a bleeding disorder than I salute you. You, my friend, are a rare individual who is doing more for the planet and human race than I can fathom.
Thirty years ago, the hemophilia population started dying off… I’m talking about 90% or more getting HIV from tainted blood products… Nearly 100% getting hepatitis C… This was beyond devastating to the community as a whole. Think about it for a moment… Almost the entire hemophilia population died over the twenty years that happened immediately after this disastrous event. As a matter-of-fact, all of my hemophiliac friends that I knew died. ALL OF THEM!
If you consider this for a moment, you will realize the depth of this tragedy. You might also realize the moms out there who lost their babies… Lost them by the thousands!!! I am crying simply typing this… Imagine (for a moment) their pain. These women have been through more than anyone deserves to endure. They have done so, and continue to do so. They are heroes. The real-deal hero!
Another point that comes to mind when I think about moms and what is known as the Hemocaust… Many of the community-run organizations were mostly managed and maintained by adult hemophiliac men. Almost all of these men died. Think on that. Literally, in a short period, we not only lost our brothers and sisters… We also almost lost the entire community, because no one was there to run the organizations. This is nearly unimaginable to me, yet it was happening around the country.
I often think of euphemisms for this occurrence. The one that really comes to mind is passing the torch. Well, I was talking about this with my buddy, Jack, the other day and it hit me… This was not simply passing the torch. It happened too fast and too devastatingly to let anyone pass anything. In an instant people started dropping like flies. No… What really happened was this. Thousands of men died. Thousands of men literally DROPPED their torches without the time or energy to pass them on. During that time, the community and future generations needed someone to act. Someone did act. The moms acted. The moms stepped up, despite their pain and anguish. Selflessly, they wiped away their tears and they picked up the torches from the ground. In some case the torches had gone completely out and needed to be re-lit. Regardless, a generation of moms… A generation of women stronger than most can imagine… A generation of loving and kind souls… Came together and rebuilt a community that nearly died.
I can tell you that I fell away from the community more than a quarter of a century ago. Heck, I assumed I was dying
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. But, to my amazement, when I came back four years ago, I found a thriving community… A community of strong people who were dedicated and focused. A community that had fixed itself with band-aids and duct tape through the nineties and into 2000. A community that was not only still standing, but standing tall, strong, and proud.
Damn! I mean… Damn! I am in awe of what transpired. And, I am eternally grateful to all of the people who came together to save us. Most of all, I am grateful to the moms.
I believe I speak for everyone, when I say:
Have a very special Mother’s Day, moms!!!
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It is obvious you have expanded upon the very kind and compassionate person you always were… I love your Association of children with disabilities and community service… It has made me think about when did I become so community service oriented and you are so right its when I was caring for you my son with hemophilia. Somehow this opened my eyes to the importance of one’s community. Mostly everywhere I’ve ever lived I have been some type of a volunteer for my community. This is generally something I don’t speak about because it is just something i love doing. I’m mentioning it here because this seems like a great time to also say thank you to all the mothers and others who view their community as something to cherish and to participate in in some helpful manner… without regard to anything dealing with politics, race, religion, physical or mental state, etc…… it is totally all about “sharing love and concern with my community” All, leaving out none, in my community …. share the love 🙂
You are my inspiration, Mom. Thank you so much for everything that you have done and continue to do. Love you more than I’ve ever let on…